Stepping up: Together for short lives resource to support transition for young people with life limiting conditions to adult services

Together for Short Lives produces ‘Stepping Up’. This is a resource setting out standards for good quality support for young people with life-limiting conditions across the three phases of transition: preparing for transition, during the transfer and when settling into adult services.

The Pathway has focuses on the role of adult services in supporting transition. This was developed in collaboration with Hospice UK, capturing learning from their Transition ECHO project. It also gives practice examples of how joined up working has been achieved in a variety of service examples.

Stepping Up can be used as framework to develop services for young people and ensure that high quality care is provided for young people with life-limiting conditions. These include standards and goals that can be used as an audit tool to identify areas for service development and for the development of local pathways that will engage with services available locally.

One key element of achieving a good transition is for parents/carers to be well prepared for the changes that happen when their child reaches adulthood and informed about how to navigate the many services that need to be joined up.

Their booklet can help them to achieve this.

Individual copies of the publications can be downloaded or a printed copy can be ordered by completing the form on Transition to Adult Services Pathway. If you would like multiple copies of either resource, please email info@togetherforshortlives.org.uk.